The viral #Neknomination from Australia, an extreme social media drinking game, involves challengers downing alcohol, posting videos online and nominating others to outdo them.
South African, Brent Lindeque, turned the game on its head, “Downing a can of beer is easy… imagine if we all harnessed the power of social media to make a difference in real people’s lives,” says Lindeque.
SA’s Nathania de Kock, #Neknominated Joost van der Westhuizen and her J9 Foundation colleagues. The #J9MomentsOfMagic initiative to give people suffering from Motor Neuron Disease (MND) a ‘once in a lifetime’ experience was launched.
Stuart MacFarlane, had always dreamed of taking his wife, Leoni and their three small children: Amy, Christopher and Duncan, to see Victoria Falls – one of the 7 Wonders of the World. But Stuart was diagnosed with MND in October 2011, and the family finances were quickly absorbed by medical bills.
This #Neknomination, changes that because The Bead Coalition, creator of the beaded MND bracelet, has just made Stuart’s dream a reality, with an all-expenses paid family holiday to Victoria Falls.
Says Joost, “I have been a sufferer of MND for 41 months and I have firsthand experience of how this disease changes the way you think and your priorities in life. Family is important; the love of life is invaluable, and the gift is truly in the giving. In the end, memories are all we have.”
The Bead Co. CEO, Joanne Lapin Thorpe says “Our MND bracelet is a beautiful symbol of support, particularly sentimental to me, inspired by my precious sister, Taryn, who also fights this disease. We are thrilled to sponsor the first #J9MomentsOfMagic campaign, and I know Stuart will treasure the memories of Vic Falls.”
“We are so grateful to The Bead Coalition for their generous sponsorship,” says Joost vd Westhuizen, who has some #Neknominations of his own. Joost and the J9 Foundation further nominate, Barend van Graan, CEO of the Blue Bulls, Gavin Varejes, CEO of Richmark Holdings and J9 Director, along with fellow trustee and Blink Pictures Director, Odette Schwegler. #Neknominees have 24 hours to ‘make good’.
South Africans can purchase a MND bracelet, available for R40 each, at all CNA’s, Foto First, Sneakers, Pick ‘n Pay Douglasdale or online at www.beadcoalition.com. Visit www.joost.co.za for more information on J9 Foundation and MND http://youtu.be/RiJCBRRBerE
The Bead Coalition (Pty) Ltd, the commercial beaded bracelet enterprise, best known for the unprecedented success of the RHINO FORCE bracelet, celebrated its partnership with Joost van der Westhuizen’s J9 Foundation with a donation of R60,592.00. The bespoke MND bracelet, hand-beaded by previously disadvantaged women in rural Africa, will be sold worldwide to raise global awareness and funding for Motor Neuron Disease (MND).
MND is a degenerative disorder of the motor neurons which control voluntary muscle activity such as speaking, swallowing and breathing, resulting in gradual weakening, wasting, and twitching of the muscles.
J9 Foundation offers patient support through the ‘MND Patient, Family, and Caregiver Quality of Life Program’, including home visits, requests for information, referrals to specialists such as counsellors, attorneys and building contractors, depending on the needs of the patient and family. Their approach draws from hands-on experience, as they continually strive to understand the overwhelming dynamics that MND families endure.
Diagnosed with MND, former Springbok rugby legend, Joost van der Westhuizen says, “The MND beaded bracelet brings life because there is love. We are honoured to be the beneficiary and encourage retailers and the public to support and wear this bracelet, to try conquer Motor Neuron Disease together.”
The Bead Co. CEO, Joanne Lapin Thorpe says, “This bracelet is a beautiful symbol of support, particularly sentimental to me. The inspiration behind the MND bracelet is my precious sister, Taryn Dickinson, who bravely faces each day with this disease.”
South Africans can purchase a MND bracelet for R40 each, at all CNA’s Foto-First, Sneakers, Pick ‘n Pay Douglasdale or online at www.beadcoalition.com. Visit www.joost.co.za for more information on J9 Foundation and MND.
About The Bead Co. (Pty) Ltd
The Bead Coalition [Pty] Ltd is a private commercial business based in Johannesburg. We identity specific causes, we create awareness and design themed, bespoke, beaded bracelets. Hand-made by previously unemployed communities in rural South Africa, the sale of our beaded range raises funds to make significant environmental, conversational and humanitarian change. Other bracelets include RHINO FORCE, OCEAN FORCE and QHUBEKA CYCLE FORCE amongst others. www.beadcoalition.com
About J9 Foundation
The J9 Foundation was formed by the rugby legend Joost van der Westhuizen in aid of those suffering from the same form of fatal illness that he was diagnosed with early 2011, Motor Neuron Disease. Joost has created a platform through this foundation to allow people, companies and friends to support the Quality of Life programs available.This is Joost van der Westhuizen’s Legacy to South Africa and the world, to everyone who watched him “J9”, carry those very words on his back and in his heart. www.joost.co.za
Nathania@joost.co.za or 082 975 9090